Friday, April 22, 2011

its a "different" wonderful!

So where do I begin... It was a year ago this February that Jayci was diagnosed with Congenital Muscular Dystrophy, I was apprehensive about making a site for her at first, but now I think it is a good time. I suppose I waited partially because I wanted to protect my baby girl. I have never posted anything on Facebook or the like because I couldn't, It hurt too bad, this wasn't the flu or the sniffles, I didn't want to belittle what was going on with her life by a status update, I know its a quick way to get information out there, but I just wasn't ready, and hey!, I'm still expecting a miracle here!! A diagnosis is not a sentence to a life less lived or less enjoyed. I could tell you many things Jayci cannot do, but rather then that I would start with the things she can do! Just the other day she was given a test by one of her therapist she scored in the high 90's for verbal and communication skills.. I mean she can carry on full conversations! Its so fun to listen to her! She can sing full songs along with the radio, with the family or all by herself! She loves being outside, She can entertain her dollies or anyone else that's around to listen to her ideas, story's or a full, exaggerated explanation of events that have taken place recently, She loves dressing up in her many tutu's and bows. She must have nail polish on each finger and toe.. or she likes me to fix it.. She loves jewelry too! You will rarely see her without a necklace on! There is something so special about Jayci, and even though I can't exactly place my finger on it. I know God plans to use her in incredible way today and in her future! She Loves life! I don't know if she knows yet what makes her a little different, She has dried my tears many times, and assures me that "its ok, mommy" and "don't be sad." She doesn't yet know the tears have been for her, I guess I ache for what tomorrow may bring, and people choosing to see a wheelchair, a disability or a handicap...When they could see the most amazing little girl in the world, that could brighten any dull day with a simple smile, What I've realized is through your life you will need to make decision on how you look at peoples ability's and disabilities Although her physical strength may appear weak.. I assure you, Strength doesn't come from physical capacity. It comes from an individual will. Strength to me now, is the size of ones heart... and trust me, She is the strongest little girl I know. My next post I will update you on where Jayci is at physically, so I can get you caught up with that! Thanks for reading!


  1. What a beautiful little lady God has blessed you and Kevin with!! This is exciting and I know you're still scared! His strength and joys will help you overcome all and, and His glory shown so all we may see is this perfect gift! What a blessing Jayci is all who meet her! cutie pa tootie!!

  2. Annie you have a beautiful way of writing this. Grandma Sue had informed me of the diagnosis, and I believe you are right about God's miracles. What I didn't know is how beautiful she is. Take pleasure in the things she can do, after all a person is only as disabled as we let them be. No matter what she is a true gift.

    Marilyn Roberts

  3. Dear Jayci Grace,

    No amount of words foreign or domestice can express how I feel right now while visiting your page. You have captured my heart. You are beautiful and wonderfully different. Not because of your disability, but because of your ability to humble my senses.

    I know how it makes you feel when your Mamma cries. But Honey, get use to it. It is what people do when they see the face of Jesus.

    I love you!
    Aunt BJ

  4. O.k. This is the 3rd attempt at leaving a comment!! I couldn't remember my google password! ah. I hate to tell you this, but the synapses in the brain fail with stress! haha. What I was wanting to say the 1st 2 times of writing is that your blog site is perfect. Perfectly beautiful. Pure. Honest and insightful. I pray that this empowers you writing your thoughts and feelings down. I pray that doing so helps break those walls of isolation down for those who are not walking this journey but giving them the tools in how to help and love you during those challenging times. You are a strong mama!! This is only the beginning:) xo-Nicole

  5. Oh, Annie. Thank you for sharing this with us. Jayci is a sweetheart and you all are so blessed to share her journey with her. <3

  6. Jayci, you are the luckiest little princess in the world to have so many people who love you so much! Your beautiful smile makes me melt and your sassy-ness makes me giggle :)
    Annie, you are quite possibly the most compassionate person that I know. There should be an award for everything that you do, not only for your kids, but for everybody else. I love you and that lil girl. May God continue to bless you and your family the way that you have all blessed me and mine <3

  7. Beautiful, Annie. Know that we are here to stand with you in anyway we can. It will be so wonderful to read updates. :) We love you all.